Join the new edition of the European Joint Programme on Rare Diseases (EJP-RD) online course “International Summer School on Rare Disease Registries and FAIRification of Data”.

Registries are key resources in order to increase timely and accurate diagnosis, improve patients management, tailor treatments, facilitate clinical trials, support healthcare planning and speed up research.

Speakers include Barend Mons and Erik Schultes from the GO FAIR International Support and Coordination Office, Claudio Carta, Ronald Cornet, Esther van Enckevort, Gulcin Gumus, Marc Hanauer, Rajaram Kaliyaperumal, Marco Roos and Mark Wilkinson from the Rare Diseases Implementation Network.

More information about the course, its programme and logistics

Register here by 19 July 2020.